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Tag Archives: interaction

Prosopagnosia

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Posted by a1000shadesofhurt in prosopagnosia, Uncategorized

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'face blindness', clues, context, diagnosis, faces, facial recognition, fragments, identify, interaction, neurological condition, stranger

It was said:

My face blindness is embarrassing – but it tells me a lot about other people

I grew up thinking I just didn’t fit it. Now, I immediately tell people I can’t recognise faces – and their response is a good measure of kindness versus ego.

Sunday morning. I walk down to the beach with the dog straining at her lead. I’m already on high alert. It’s the moment in the week when people are most likely to be wandering along the seafront, feeling chatty. I’m mentally priming myself, sorting through the categories I might encounter: parents from the schoolyard (hopefully with their children), people I’ve worked with (increasingly hopeless), neighbours from the surrounding streets (no chance). I should have gone to the woods today. It’s too risky.

I cross the road and hear, “Katherine! Hello!” I wonder if I can get away with pretending I didn’t notice. I’m wearing earbuds, which is usually a good precaution, but this woman is determined. She crosses the road diagonally, waving. “How the hell are you?” she says. Straight hair, mousy blonde. No glasses, no tattoos. Jeans, a grey sweatshirt. For God’s sake, why are these people so studiedly ordinary? I fidget with my phone, trying to buy time. Her face is plain. I don’t mean plain as in “ugly”. I mean plain as in vanilla: bland, unremarkable. There’s nothing here that I might have stored in words. Her nose is straight. Her eyes are blue. Her teeth are orderly. And she knows me.

“Hi!” I say, as warmly as possible. “How are you?” This can sometimes elicit clues. Not today. One of the many side-effects of being face-blind is that you become uncomfortably aware of the ordinariness of most interactions. We have stopped in the street to say absolutely nothing to each other. And only one of us knows the context.

The dog lunges to her feet and pulls in the direction of the sea. “Looks like she’s desperate to get going!” I say, laughing, “So sorry! Lovely to see you!” And I’m off at a gallop before this woman, whoever the hell she is, can think about joining me.

I didn’t always know I was face-blind. I grew up thinking that I just didn’t remember people. This, as a friend once told me, seemed a lot like arrogance – an aloof lack of interest in others. But that’s not how it felt on the inside.

I was mostly fine in the closed world of primary school, but when I moved up to secondary, I was immediately disoriented. The corridors were full of teachers I couldn’t identify, and pupils I couldn’t tell apart. As we grew older, the girls in my class developed collective crushes on certain boys from the school across the road and I learned to fake my way into those conversations, rhapsodising about faces that were blank to me.

I barely got to know anyone at university. Unless they lived in my building, they were all part of the general blur of boys with floppy hair and girls in ponytails. I couldn’t recognise them individually, so I didn’t learn their names. I put it down to not fitting in. Back home in the holidays, I thought my ex-boyfriend had moved into a house in the next street. I chatted to him quite often, falling into step with him as we both walked towards the town. It took several weeks for me to realise that he was, in fact, a complete stranger.

It’s not just that faces don’t stick in my mind; they also shift beneath my gaze while people are standing in front of me, and I seem to only be able to perceive them in fragments that won’t piece together as a whole. I routinely struggle to identify those closest to me. The afternoon after my husband had his long hair cut short, I managed to stand next to him asking friends, “Has anyone seen H?” In the three years we lived apart while I was at university, I never could bring his face to mind.

I couldn’t pick out my own son from all the other little blond boys at nursery, and still now in the playground I often have to ask other parents if they can spot him. If I know them well, I can explain. If I don’t, I have an armoury of excuses. He moves too fast! He’s jettisoned his coat! He must have been hiding!

It is a shameful thing for a mother not to recognise her son, but then again I could sniff him out blindfolded in a crowd. I would know his voice anywhere, the way he walks, the perpetual motion of his face. This is how I remember people. I can do a lot of work with the flow of an upper lip as someone talks, with a gait, with the timbre of a voice. I can store certain people in words. There was a man at my last workplace whose moustache grew outwards like a rosette. It fascinated me anew every time I saw it, and I always recognised him, while routinely blanking the members of my team.

At least I knew what it was by then. I only learned the term in my mid-30s, when I read a tweet by Philippa Perry explaining her own face-blindness, and the embarrassment when she’s unable to identify seeming strangers at events. It was a heart-stopping moment for me; a spark of grateful recognition. “Is that an actual thing?” I replied. “An actual condition? I’m not just a terrible person?”

Now, when I mention it online, somebody usually pops up to tell me it’s actually called prosopagnosia, as if that makes any difference. The opaque scientific name does nothing to assist me, so I routinely forget the word like I’d forget a face. Research is in its infancy, but we know that face recognition is dependent on a network of brain regions across the right and left hemispheres. There is so much that can disrupt these connections, and so it’s likely that there are multiple ways of being face-blind.

I used to compare notes with my former colleague Carolyn Oulton, a professor of English literature whose ability to recognise people seems even more limited than mine. Carolyn sought a formal diagnosis in the hope of making her working life easier, but discovered that her disorientation extended to places and shapes, too. “I now know I can’t call it prosopagnosia because it’s broader than that,” she tells me. “I’m left saying ‘I’m bad with faces,’ which is exactly where I started.”

I’ve never bothered with a diagnosis. I’m not sure what it could do for me. There’s no treatment and certainly no cure. Even if there were, I’m not sure I’d take it. Strange as it seems, my face-blindness feels innate to me. Carolyn agrees: “I don’t know if I enjoy being face-blind, I just know that I’ve created a way of understanding it as part of the way I navigate life,” she says. “To change that would be like suddenly having a different name.”

However, another face-blind friend, who prefers to remain anonymous, would love to find a cure. “I’m an extrovert. I need people,” she says. “Face-blindness is a terrible blight on that. I’ve offended too many people by walking past them in the street, and I’ve spent too many parties thinking I don’t know anyone when I know plenty of people. I feel quite vulnerable around it.”

Perhaps that’s an insight into why I’m more accepting of my own face-blindness – it’s the perfect complement to my introversion; to my sense that I don’t really want to socialise anyway. The two conspire together – it’s the perfect pairing. I’m best off avoiding busy rooms, because they exhaust me, and my prosopagnosia relieves me of having to process all those different personalities.

I increasingly use my face-blindness as a sorting device. I tell people about it on our first meeting, and the way they behave after that reveals a lot. Some are touchingly helpful – one friend always finds a way to shoe-horn her name into the first sentence while I orient myself – but I’m surprised at the number of people who don’t think I’ll be blind to their face, uniquely. They seamlessly translate my face-blindness into a failure to love them enough, rather than a neurological difference. Disclosing it has become a reliable measure of people’s kindness, their neediness, their ability to put their ego aside.

But there are other things that leave me attached to it. Faces that I’m told are beautiful, the models and actors with compact features and perfect symmetry, all look exactly the same to me. They are frictionless, offering nothing on which I can anchor my gaze, and my eyes slide off them. I don’t understand why they are so lovable to everyone else. To me, they seem hard and resistant.

The faces I fall in love with are distinctive. They have broken noses and wrinkles, crooked teeth and diagonal smiles. They are individual. They signal wisdom, a life lived. I can’t help but be grateful for these faces. More than that, I recognise my loved ones just as intensely as a person who could bring their faces easily to mind. My sense of connection is multi-faceted, engaging all my senses, and it’s full of wonder, because each time I look at them, I am seeing something new. I know them no less deeply. I just find my home in a different way.

How robots are helping children with autism

11 Wednesday Mar 2015

Posted by a1000shadesofhurt in Autism

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autism, body movements, chest monitor, Children, classroom, communication, early diagnosis, emotion, facial expressions, family, feedback, interaction, modes, motions, non-threatening, non-verbal communication, reactions, research, robot, social interaction, social skills, teacher, therapist, treatment, withdrawal

How robots are helping children with autism

Anthony Arceri is seven and has autism. His clothes are covered in sensors, and he is standing in front of Zeno, a smiling, 2ft-tall robot. “What is your favourite food?” Zeno asks Anthony. “Chocolate milk and french fries.” “I love chocolate milk,” Zeno replies. The robot raises its arm, and Anthony copies. Zeno rubs his stomach, and so does Anthony.

It looks like fun – and for Anthony, it is. But researchers believe the interaction between Anthony and the robot also holds the key to early diagnosis and treatment of autism. Zeno is the result of a collaboration between Dr Dan Popa at the University of Texas at Arlington, Hanson RoboKind, Dallas Autism Treatment Centre, Texas Instruments and National Instruments – and is the brainchild of Hanson Robot owner and former Disney imagineer David Hanson.

Diagnosis of child autism has traditionally taken place through social interaction and speech exercises. This means that, until a child can speak, diagnosis is either a lengthy process, or can’t happen. But Zeno can interact with children through nonverbal communication such as body movements and facial expressions, speeding up diagnosis and perhaps even enabling it to be carried out before a child can talk.

Zeno isn’t just used for diagnosis. Children with autism can sometimes find social interaction threatening – making them withdraw, even from family members. Robots such as Zeno have features that look slightly human, but are obviously not human. This makes communication, with all its complex and frightening subtleties and nuances, less complicated and more comfortable for the child.

Anthony’s mother, Pamela Rainville, found out about Zeno from the Dallas Autism Treatment Centre, and thought the project might benefit Anthony. “It’s always good for him to be put in different situations, things outside his normal routine. Anytime he can be around other people, it’s a good learning and growing experience for him.”

So far, Anthony has had two therapy sessions with Zeno. Rainville believes he got more out of the second meeting than the first, and she expects he will get even more out of subsequent interactions with the robot. “This second time, Anthony fist-bumped Zeno, which was great. It shows he was a little more relaxed.”

Popa believes that Zeno is a good motivator for children as he is engaging and non-threatening: the children listen to the robot. “The idea is for the robot to instruct kids, give them some useful social skills and at the same time observe their reactions and calculate their reaction times. That calculation could form some kind of an autism scale.”

He says there are three ways in which therapists can use Zeno. “The first mode is called a scripted mode of interaction, where you pre-programme a certain sequence of motions. For the second mode, we have added a control system so we can have an operator or therapist control the robot by tele-operations. In this mode, it mirrors the motions of the instructor.”

In the third mode, the child can take control of the robot. “This can be unsafe as the child can do things – such as slap himself – that the robot will copy and possibly break. So we tend to use this third mode as entertainment only.”

Zeno now has a brother, Milo, as well as an international family. Zeno came first, and is used in research and classroom settings. Milo was created specifically to work directly with children. According to Richard Margolin, director of engineering at Hanson RoboKind and part of the team who developed both robots, some children with autism who had never spoken directly to an adult teacher spoke to Milo.

Milo looks very similar to Zeno. His expressive face is an important feature, because a characteristic of autism is the inability to read and connect with the emotions of others. Children are asked to identify the emotion shown by Milo from multiple choices on an iPad. Milo’s eyes are cameras, recording feedback. The child wears a chest monitor that records changes in heart rate and therefore emotion. A typical lesson would involve Milo and a child interacting one-to-one; the child responding to the robot with an iPad, and a therapist or teacher present to help if needed and record difficulties and progress.

One of Zeno and Milo’s international relatives is Kaspar, designed in the UK by the University of Hertfordshire’s Adaptive Systems Research Group. The size of a small child, unlike Zeno and Milo, Kaspar has a neutral expression so that children can interpret him how they wish. Research is under way to see how Kaspar’s use could support children with other developmental conditions, such as Down’s syndrome or attention deficit hyperactivity disorder, known as ADHD.

Another distant cousin is Nao, who was created in 2006 by Aldebaran Robotics and is being developed as a “house robot”. Along the way, Nao has been used as an educational tool, and the University of Birmingham’s Autism Centre for Education and Research worked with Aldebaran Robotics on a version of Nao to help children with autism. But like Kaspar, Nao has an expressionless face.

What seems to be unique about Zeno and Milo is the way that their expressiveness defies long-held robotic conventions. Designed to be the first advanced social robots in the world, they could eventually have an impact far beyond the diagnosis and treatment of autism. RoboKind envisages a broader role for its robots in educating young children. In the words of his creators, Zeno represents the future of robotics and could be “a wonderful addition to every household”.

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